Skylar's Fight: Battling Spinal Muscular Atrophy (SMA) through education and fundraising

 

Skylar William Bahrenburg
Skyalar

Skylar passed away in his sleep peacefully on 6/21/2008. He will always be in our hearts and prayers. Read Skylar's Obituary.

If you wish to donate the Foster Family Program of Waianae is building a children's gazebo, "Skylars Sunny Shelter" and is accepting donations.

Learn more about this project


Or you may donate to Families of SMA

Skylar's Memorial - June 28, 2008


2007 Skylar’s Fight Alcatraz Swim

View this montage created at One True Media

View a short video of Team Sky's
2007 Escape from Alcatraz event



The Bahrenburg Family

A letter from Liz about the Bahrenburg family, May 2002

Read Letter


Gallery

All We Really Need to Know...

A note from Jennifer, Skylar's 1st grade teacher.

In thinking about Skylar I came up with this list that I wanted to share with you. He taught me many lessons. You know I was told I'd have a handicapped kid in my class. After the first few days I realized I didn't have a handicapped kid in my class at all. I had a child in a wheelchair and that's the only difference between Skylar and the rest of the kids. What I had was 17 different kids, all special in their own ways. I applaud you both again for raising a wonderful child.

What follows are a list of the lessons that Skylar taught me, and I think everyone in the class...

All We Really Need to Know, we Learned from Skylar

 

Learn more about SMA

SharkFest 2003      Wannabe Cup 2004   Sharkfest 2005      Wannabe Cup 2005   Skylar Bahrenburg   Skylar Bahrenburg   Wannabe Cup 2006   
Skylar Bahrenburg                   Skylar Bahrenburg and his SMA-fighting pug